Health Intelligence Lead

At this exciting time for Blood Cancer UK, we are delighted to create this new role developing our health intelligence approach. We are seeking a dedicated professional to lead the development of our blood cancer health data approach. This will involve maintaining and enhancing a portfolio of external facts, statistics, and evidence as well as overseeing our use of this insight internally.

You will have expert knowledge of NHS and UK health data sets, alongside a relevant qualification or equivalent experience in quantitative analysis. You will be confident in handling health datasets, and be able to summarise large amounts of data and information in a way that is understandable to the relevant audience.

Your role will involve sourcing and managing data relevant to our mission particularly blood cancer data sets, clinical trials and blood cancer drugs pipeline, and other national data sets that impact blood cancer outcomes. You will be responsible for data collection and analysis and supporting internal teams to use our data with confidence, particularly statistics that we use in our external communications and messaging.  You will lead on the associated data governance for the collection and use of relevant external blood cancer data sets, working in partnership with colleagues managing internal data. Alongside this you will identify key health data gaps and work with others to develop approaches to address these, including through collaboration with external partners.

If you are passionate about data and committed to our cause, then we would love to hear from you to help us ensure no one dies of blood cancer.

Expected travel for this role is: Majority of our roles can be performed hybrid. Required to attend the London office 2-4 days per month, plus two all-staff away days and external meetings as required.

We welcome applications to work full time or part time (minimum 28 hours and or job share, please specify the hours you wish to work in your cover letter).

Application DeadlineJune 10, 2025DepartmentResearch, Policy & Services Employment TypePermanentLocationLondon/HybridWorkplace typeHybridCompensation£50,000 - £54,000 / yearReporting To

Key Responsibilities

MAIN RESPONSIBILITIES

Responsibilities:

To lead the development of a health data strategy which enables the following areas of activity:

1. Build and enable the use of strong health data charity content:

• Maintain a portfolio of regularly updated external facts, statistics and evidence relevant to the needs of the organisation.
• Proactively identify and source data which is relevant to our mission and strategy, requesting such data where needed.
• Ensure Blood Cancer UK maximises data collection and analysis to enhance our ability to ensure nobody dies of blood cancer or their treatment.
• Be the key internal source of expertise regarding statistics relevant to blood cancer ensuring other teams make the most appropriate and impactful use of this data. You will lead our work on external blood cancer data, collaborating closely with internal data and insight teams.
• Ensure Blood Cancer UK is able to plan for data releases
• Be able to explain the potential implications and limitations of data sets
• Be a champion for the use of blood cancer data across all our work and provide relevant expertise.
• Lead on the governance and data management systems for the collection and use of relevant external blood cancer data sets, working in partnership with colleagues managing internal data.

2. Lead and influence change in blood cancer health data:

• Horizon scan, identify gaps and/or opportunities to develop blood cancer health data and support prioritisation for action
• Hold a strategic overview of all mission team projects to ensure health data is considered and remains a core part of the approach
• Champion and develop an approach to drive forward the data recommendations in the Blood Cancer Action Plan.
• Commission external organisations to obtain and/or analyse health data from across the UK

3. Collaborate with others to ensure blood cancer health data has an environment to flourish in:

• Internally, work within the existing organisational data management systems to store, manage and report on data, including being part of the internal Blood Cancer Insight Network.
• Work collaboratively with existing data, insight and digital teams to ensure alignment in how we manage and use data across the organisation.
• Support internal teams to develop monitoring and evaluation processes around mission-focussed products and services, and their impact on broader health data sets
• Externally, represent Blood Cancer UK on relevant forums and government working groups
• Work closely with the Blood Cancer UK clinical trials support service to ensure the data arising from the service informs our wider data insight.

THINGS WE ALL DO

• Promote Blood Cancer UK’s vision, mission and core values
• Support Blood Cancer UK’s commitment to actively promoting equality, diversity and inclusivity
• We’re all fundraisers. This is slightly different for all roles, and your team will have fundraising KPIs and objectives we all work to
• Attend and assist at Blood Cancer UK events and activities as required (NB this involves evening and weekend work)
• Be an effective ambassador for Blood Cancer UK at any activity you attend
• All staff are expected to adhere to Blood Cancer UK’s policies and procedures
• Do any other reasonable things your manager needs you to do
• We work in partnership with our community by actively involving people affected by blood cancer in the decisions we make about our work – what we do and how we do it

Skills, Knowledge and Expertise

• A relevant degree or equivalent experience of quantitative analysis
• Expert knowledge of NHS and UK health datasets and the operating environment
• Substantial experience of analysing health data, managing multiple projects, and confident using data and insight to improve performance and make decisions
• Demonstrable experience in operationalising large datasets and statistical analysis, with the ability to review and summarise large amounts of data and information in a way that is understandable to the relevant audience through collaboration with relevant teams
• Experience or ability to learn how to manage the technical elements of data storage and manipulation with minimal supervision
• Good knowledge of epidemiology and relevant research methods
• Experience of building and maintaining a network of relationships with peers in external organisations
• Experience of communicating information and statistics to lay audiences with the commitment to understanding users’ and audiences’ needs and behaviours, and developing products, campaigns, services and communications based on meeting these needs
• Fluent with digital collaboration tools; experience of using SQL Server and PowerBI or similar .
• Good working knowledge of data protection principles.
• Excellent written and verbal communication skills, with demonstrable ability to communicate succinctly face to face, over the phone, and online with a wide range of stakeholders internally and externally.
• Ability to rapidly understand high-level concepts and analyse processes
• Able to remain informed about digital improvements and potentially useful data sets in the wider health and social care landscape

About Blood Cancer UK

FLEXIBLE WORKING & OUR BENEFITS

We welcome conversations about part time working, job shares, and all forms of flexible working right from application stage. You can get in touch with us at [email protected] if you want to ask us anything about flexible working.

Benefits: We think our benefits are brilliant, and the majority start from day 1. These are just a few of them:

• 30 days annual leave PLUS bank holidays
• Generous pension scheme and Life Assurance
• Enhanced maternity, paternity and adoption leave, as well as study leave and a day off to move house
• Wellbeing is a priority for us, we offer a wide range of individual and team support in our Wellbeing Hub
• Our Academy is our in-house Continued Professional Development (CPD) learning and development programme, including an internal mentoring scheme. We have organisation-wide focus days, which are days set aside for you to focus on your own development, without being interrupted by emails and meetings.
• Cycle to work and season ticket loans
• Opportunity to take sabbaticals

You can find full details about our benefits on our website.

Location: Working agile means we changed from having a culture where people are expected to be in the office from 9am to 5pm to one where we’re much more focused on what they deliver. We've built a positive culture where autonomy, trust, wellbeing and flexibility allow us to recruit and retain the very best people.   We recognise that teams still need to come together regularly to develop relationships and strengthen collaborative working.   Therefore, for the majority of roles, your contractual place of work will be one of our offices. The expectation for how often you will be required to attend the office is outlined in the job profile and will be discussed with you.   Details about our hybrid and agile working approach (including how travel expenses work) can be found on our website.

HOW TO APPLY

We ask you to send us a CV and cover letter. In your cover letter, we'd like to know why you're interested in working with us at Blood Cancer UK. It's also helpful if you tell us why you think you are a great candidate for this role based on the skills, knowledge and expertise section above. Your cover letter doesn't have to be too long, 1-2 pages is ideal. Please don't add photos or graphics to your CV, as we use blind shortlisting at this stage of the process.

Full details about our recruitment processes, including how we use blind shortlisting and what to expect at each stage of the process can be found on our website. Sometimes we close our vacancies early, usually because we have had a lot of great applicants, so we’d always encourage you to apply early rather than wait until the deadline.

WHY WORK AT BLOOD CANCER UK?

We're the 9th best charity in the UK to work for according to Best Companies 2021!

We started because of Susan, we’ll get there because of you.

Blood Cancer UK was started by one family who lost their daughter, Susan, to blood cancer, and that history and sense of family continues to shape who we are today. When you join Blood Cancer UK, you don’t just become an organisational employee – you become part of a collaborative community dedicated to funding research into beating blood cancer that includes some of the most inspiring people you’ll ever meet.

And we’re not that far away from beating blood cancer. We’re confident we can do it within the next generation, and this makes us hugely ambitious and gives us a sense of real urgency. It also means we’re changing quickly as an organisation as we constantly challenge ourselves and strive to become more and more effective. This pace of change means working here isn’t for everyone. But if you’re excited by the chance to work in a fast-paced, agile and supportive environment with the focus and ambition to beat blood cancer this could be the place for you! We focus on results rather than time spent at a desk, so we deliver more for people affected by blood cancer.

Blood Cancer UK offers the chance to work for and with people affected by blood cancer, and the opportunity to advance your career and develop your skillset whilst taking on exciting new challenges and making your mark.

EQUALITY, DIVERSITY & INCLUSION

We are committed to actively promoting equality, diversity, and inclusivity. Read our statement which reflects our strong drive to change in this area.

To this end we would welcome approaches from individuals from underrepresented groups, including minoritised communities, and applicants with a disability, to better reflect the community we serve and help broaden our perspectives.

You can read some examples of how we can support you through the application and interview process here.

Documents

Health intelligence lead job pack

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Health intelligence lead jd & person spec

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